I have made a video all about sending out a message to people about me and my Tourette’s Syndrome. I want to say to other people to not let their Tourettes, or any other conditions, define them or stop them from doing anything that they want to do. I even went to the beach to film a lot of this! I play Bach’s Cello Suite No.1. Please watch this video and share it with all of your friends and family as I hope that it will open People’s minds and show what can be achieved, even if you have a disability like I do! 🙂 Xx
Update: 31st August 2018
Comments and feedback
I have received a huge amount of positive feedback from this post and video. Thank you 🙂 Xx
Pirate FM a radio station in Cornwall published a news item!
https://www.piratefm.co.uk/news/latest-news/2672690/watch-cornwall-12-year-old-raises-awareness-of-tourettes/
Tourettes Action added my post to social media and my video to their site!
“Wilamena is a musician who has #Tourettes and #OCD. She is determined to ‘help other children with TS and inspire them to live life to the max’ Watch this great video and be inspired @ocdaction @OCDUK @ChasingStigma buff.ly/2oh2lZQ “
FaceBook comments that came in:
Martha-Lilly Dyer “WATCH THIS VIDEO! So incredibly proud of my gorgeous little sister for opening up about her conditions and showing how amazingly talented she is at the same time!”
Christine York “I love the way this girl explains her feelings. Way to go her!”
Sheila Brown “What an amazing young lady! Beautiful and talented and she explains Tourette’s very well indeed. You have every right to be proud!! xx”
Sharon Evans “What a very enlightening video, made by a remarkably bright and articulate girl. Well done Wilamena… and thank you for sharing your story. I hope your bravery will bring more education and understanding to us all about Tourette’s Syndrome.”
Clare Townsend “Well done Wilamena, you explained your Tourette’s so beautifully. You are obviously a talented and courageous young woman.”
Karen Jaggard “Wow what an amazing young lady you both have you must be so proud of her! Good luck Wilamena with your scholarship reach for the stars you are truly fabulous.”
Susie Reece “Your daughter is amazing in so many ways and I think her video should be shown worlwide! So brave of her to share her story and with such a positive attitude too. Very best wishes to you all.”
Kirstie de la Mer “This is so brilliant guys- tell W how proud I am of her as a fellow invisible disabled person- wish I was as brave and mature at 12- so glad you have found ways to manage and be positive after a tough journey.”
Jilly Ballantyne “Wow great film Wilamena May! Beautiful playing xx”
Kate Ashbarry “A beautiful and inspiring video, from a beautiful, talented and inspiring girl.”
Susan Robbie “Wilamena is one remarkable young lady – it is no wonder you are proud of her.”
Anne Pollard “Wilamena, brave, beautiful & so talented. Thank you for explaining Tourette’s so well.”
Emma Capstick “Brilliant, very informative, you are very talented. Thank you for sharing it Wilamena.”
Lois Boullier “A brilliant explanation Wilamena of Tourettes and a wonderful musician. Thank you x”
Tina Hinder Laurence “Beautiful Wilamena, so talented, courageous and beautiful inside and out 💕 x”
Alison Brown “Such a beautiful, beautiful girl xxx”
John Frankland “Amazing and inspirational.”
“Wow, Great stuff! Wilamena is so good at speaking in front of the camera! Really interesting and well expressed- I can see how important it is to share insight into living with Tourette’s. Will be so helpful and inspiring for others effected by it to see too.
Future career in TV?..” DJ.
“Somebody sent me your video – i have no personal experience of Tourettes, but was impressed and very moved by your story. You seem to be an exceptional young person, and so balanced about your condition. I just want to wish you all the very best and have a wonderful time on cello. Bach would love it!” SC.
Alan Scaplehorn “This is amazing!”
Andrew Chandler “What an inspirational video, wonderfully articulated, what a little star she is :)”
Flo McMahon “She’s amazing!! And so well explained.”
Kirsty Hobkirk “Wow! I had no idea. She is just incredible.”
Caroline Fitzpatrick “Wow, what an inspirational young lady. Well done Wilamena.”
Helen Robson “You are a true inspiration Wilamena.”
Lisa Nelsen “Wonderful video…will share.”
James House “Brilliant watch, very educational.. and as we all know, so talented!”
Ashby Mayes “Very proud of you Wilamena! What an incredible video, hope to see you both soon! (maybe on an NCO course)”
Eliza Woodward “This is so amazing.”
Melanie Edwards “So proud of you. You explained everything so well and you are so inspiring, what a future.”
Joanna Stell “This is truly inspirational.”
Sharon Evans “A remarkable video about what it is like living with Tourette’s Syndrome. This is Wilamena’s story. Do watch. X”
Helen Jones “Wilamena, you’re an amazing young woman!”
Tim Robson “You are a true inspiration Wilamena.”
Stephen Corry (CEO Survival International) “People don’t get this. John Dyer is @Survival supporter & his daughter has made a great little film about her “disability.” (Racists don’t get racism, Nazis don’t get Nazism either. In one way, the problem’s as simple as that.) Well done Wilamena!”
