Welcome to my world – my journey with Tourette’s Syndrome.
As if appearing on ITV Good Morning Britain wasn’t enough for one day – on the drive back home, I received a call from BBC Radio5 Live and within the hour and sat in the car just off the M4, I was in a live discussion with the fantastic Naga Munchetty and neurologist Dr Jeremy Stern who is an expert in Tourette’s Syndrome.
Yesterday, Monday 26th June 2023, I was invited to the ITV Good Morning Britain TV studio in London to discuss live on air what it’s like to be a musician with Tourette’s Syndrome and to speak to the challenges that Lewis Capaldi is experiencing in his life with late-onset Tourette’s Syndrome.
What an exciting month! I was approached to do an interview with ITV Westcountry. With footage of myself and Seren Jaye, a short film was put together about Tourette’s Syndrome and how the media have misunderstood and misrepresented it. We both talked about the stigmas attached and the difficulties we encounter in everyday life. Watch […]
In the summer of 2021 I was lucky enough to discover an online conference held by NJCTS – New Jersey Centre for Tourette’s Syndrome, aimed at building confidence in young people suffering with Tourettes syndrome and enabling them to advocate for themselves and others, out in the community. Because it was an online course, this […]
Hello everyone, I hope that everyone is ok and having a good summer. Sadly today I am going to address something that has caused a huge negative impact on the Tourette’s community recently. On July 19 2022 Channel 4 broadcasted a documentary called “Britain’s Tourette’s Mystery…” presented by Scarlett Moffatt that has caused outrage within […]
This month has been Tourette’s Syndrome awareness month and I worked hard to spread the word and educate as many people as I could, in as many ways as I could! What is Tourette’s Syndrome? Tourette’s syndrome is a neurological condition that causes a person to make involuntary sounds and movements called tics. It usually […]
Hello everyone, I am really excited to let you all know that I was interviewed live on BBC Spotlight News TV on 15th February 2022! I hope that you are all well and happy new year, as this is my first blog post of 2022 due to a few hectic weeks at school with my […]
Hello everyone, I hope that you are all having a good summer so far and enjoying the sunny weather when you can. As some of you may already know, I have previously been to something called Ticfest which is run by the charity Tourette’s Action. It is where families that have children with Tourette’s Syndrome […]
I am so lucky to have support from the NHS and school for my Tourette’s Syndrome, OCD and anxiety and it really helps me, but what happens as I get older? Students and adults can really struggle to access enough support. Typically a student in higher education might only be offered six sessions of support […]
The BBC have selected me, and the story I submitted for the BBC Young Reporter competition to be one of the winners!
The BBC have selected me, and the story I submitted for the BBC Young Reporter competition to be one of the winners! The BBC said “More than 2,500 young people aged 11-18 submitted original and interesting story ideas to the competition, which is in its third year. It gives young people the chance to make […]
Hello everyone, Today was the last day of Ticmas because it is Christmas Eve! I hope that you have enjoyed being able to watch a new video everyday. I am proud of myself for managing to do it! For the last Ticmas video my family and I sat down in front of the Christmas tree […]
Hello everyone, I can’t believe that Ticmas is almost over and that Christmas is literally just around the corner! For today’s video I talk about why I play music and I also talk about famous musicians who are also Tourette’s sufferers! If you haven’t seen yesterday’s video then check that out here. Merry Christmas and […]
Hello everyone, I hope that you have had a good day full of fun festivities! Today was day 10 of Ticmas, so I decided to make a video all about why Tourette’s syndrome can make taking exams extremely difficult. There is currently a petition that Tourette’s action have been promoting that is arguing that people […]
Hello everyone, Today was day 9 of Ticmas so my sister and I made a festive video where we made a Christmas gingerbread house. We managed to make it from scratch without it completely failing! If you haven’t seen yesterday’s video then check that out here https://youtu.be/qFDrVo8z23E Merry Christmas and Ticmas, Wilamena 🙂 Xx
Hello everyone, For Ticmas day 8 I made a short video about why sleeping can be quite tricky if you have Tourette’s Syndrome. I talk about why it can be tricky and what I do to help make sleeping easier. I work through a download about sleep problems that is available at Tourettes Action for […]
Hello everyone, Today my sister and I had a bit of a bad day and I was really struggling to film one of my normal videos, so instead we made a video where we talked about mental health struggles by making a collaborative piece of random art that reflected how we had been feeling that […]
Hello everyone, I hope that you are all having a fabulous day filled with plenty of festivities! Today was Ticmas day 6, so my sister and I sat down and made a video where we talked about things that most people with Tourette’s Syndrome can relate to. We discussed things like the worst games to […]
Hello everyone, I hope that you are all having a good day full of festivities! For Ticmas day 5 I made a video where I chatted all about therapies for Tourette’s Syndrome (ERP and HRT) and therapies for OCD (CBT) and my experience with these. If you haven’t seen yesterday’s video yet then check that […]
Hello everyone, I hope that you have all had good day full of festivities! For Ticmas day 4 I filmed a video with my sister, Marley, where we made some necklaces for various Christmas presents and chatted all about the world of Tourette’s Syndrome cousins (conditions that are linked to Tourette’s Syndrome) and we specifically […]
Hello everyone, I hope that you are all having a good day full of festivities. For Ticmas day 3 I take you with me to a hospital appointment and then I sit down and chat about medication for Tourette’s Syndrome. I talk about my experience of taking clonidine for Tourette’s Syndrome and all of the pros […]
Hello everyone, I hope that you are all having a good day! Welcome to day 2 of Ticmas! For today’s video I sat down and had a little chat all about tic attacks. I hope that you enjoy watching it and if you haven’t seen day 1 already then go check that out on my […]
Hello everyone, I hope that you are all having a good day and are enjoying the lead up to Christmas! From yesterday until Christmas Eve I am going to be posting a video everyday, which I am calling 12 days of Ticmas! Yesterday’s video was me and my sister baking and chatting about how sometimes […]
Hello everyone, I hope that you are all ok and having a good day! 🙂 I had my first tic attack at the weekend in a very long time which was a bit frustrating. It as quite scary, but luckily my best friend was there in the room and knew what to do. She went […]
Hello everyone! The summer has officially come to a close and I am looking forward to returning to school, but obviously I am feeling the end of summer blues and the September nerves! This has seemed to bring back some wordy vocal tics, which have been hibernating for quite a while now! My current vocal […]
Hello everyone, I hope that you are all doing ok and making the most of the last bit of summer. Earlier in the summer my sister Martha-Lilly and I filmed this fidget toy unboxing for my channel but I forgot about it for a while which is why I am only posting it now! So […]
Hello everyone, I hope that you are all ok and enjoying the summer! So during the lockdown my Mum and Sister started listening to this podcast by Ollie MN and George Ezra called phone a friend, which as the name suggests, they phone each other once a week and chat about pretty much everything. It […]
Hello guys, My big sister and musician Marley and I were bored in lockdown so we decided to write a song which we have called “lockdown blues” all about the COVID-19 Coronavirus crisis. It was a bit of fun and whilst I did it my tourettes did not bother me! Music keeps me well and […]
School is still out due to the coronavirus, but I still have to practice hard and have my virtual online music concerts to do. At the moment that means a solo from my home for the school’s YouTube page of lunchtime concerts! So here is ‘General life’ by Emmanuel Sejourne played on my marimba. My […]
UPDATE: My interview is now due to go out in Michael Ball’s special Children in Need special show on Sunday 17th Love 2019 between 11-1pm live from the Savoy. —————– Hello everyone, As you may know I go to something called Tic Fest which is run by Tourette’s Action. Tic Fest is where families with […]