Hello, I’m Wilamena and I’m a musician, 14 year old girl, surfer, blogger, bike rider, baker, and I also have Tourette’s syndrome and OCD.
I am writing this blog to bring some awareness and to help other people that also have these conditions. This blog is about my story, my daily life, my tics, my struggles and little tips on how to cope.
So, welcome to TicTastic! Xx
MY LATEST BLOGS
Lockdown Blues
Hello guys, My big sister Marley and I were bored in lockdown so we decided to write a song which we have called “lockdown blues” all about the COVID-19 Coronavirus crisis. It was a bit of fun and whilst I did it my tourettes did not bother me! Music keeps me well and happy. We […]
Lunchtime Concert
School is still out due to the coronavirus, but I still have to practice hard and have my virtual online music concerts to do. At the moment that means a solo from my home for the school’s YouTube page of lunchtime concerts! So here is ‘General life’ by Emmanuel Sejourne played on my marimba. My […]
I’m Back! 🙂
Hello everyone, I am sorry that you haven’t heard from me in a while! Life got very busy all at once, so I haven’t had a chance to catch you up on everything. As I am now at home in quarantine I decided that I would start making videos again. I am going to start […]
Exciting BBC Radio 2 Interview!
UPDATE: My interview is now due to go out in Michael Ball’s special Children in Need special show on Sunday 17th Love 2019 between 11-1pm live from the Savoy. —————– Hello everyone, As you may know I go to something called Tic Fest which is run by Tourette’s Action. Tic Fest is where families with […]
I crumpled!!
Hello everyone, Today things didn’t quite go to plan because right now I am still supposed to be on a National Children’s Orchestra (NCO) course, but sadly this time my tics just got in the way so I have had to come home. Sometimes you just can’t work around things or your Tourette’s just gets […]
TicFest
Hello everybody, I have recently come back from something called TicFest which is when families with children who have Tourette’s syndrome get to come together for a weekend residential and meet each other whilst doing different activities. It gives everyone a great opportunity to chat with other people who are in similar situations. There are […]
Eden Project Adventure
Hello everyone, the other day I went with my parents to this place called the Eden Project for the day. I have been to the Eden Project many many times before, yet there is always something new to go and see! I was a bit nervous about going because it can sometimes be quite busy […]
New research project into an app to manage Tourettes!
Hi everyone, I have recently been involved with a research project that is being run at Nottingham University and supported by Tourette’s Action that is looking for lots of young people with Tourette’s Syndrome to take part. I spent an hour talking with Camilla Babbage, via FaceTime, who is organising this research from Nottingham University. […]
Ups and Downs!
Hello guys, I am really sorry that I haven’t done an update in a while, it is because my tics have had a big flare up again! Overnight during the half term, I started having big full body tics again. I ended up having to miss the first couple of weeks of school after the […]
Pros and Cons of using a wheelchair!
This video is all about the good things and annoying things about being in a wheelchair. I use a wheelchair because I get lots of foot tics. The foot tics can be really severe and painful and can cause damage to muscles or tendons in my feet or ankles. For long distances, or anywhere which […]
Wheelchairs!
Hi everybody recently I have been getting a lot of foot tics meaning that I am now back in my wheelchair and sometimes have to use crutches, which isn’t great. Lots of the time people seem to think that if you need to use a wheelchair it is disabling you more when actually it is […]
Things don’t always go to plan.
Hey, guys, it is my first week back at school and it has been pretty good, but over the weekend I encountered some teasing and laughing because of my tics. Because I board at school, my best friend from school and I met up with some of our friends from the boys boarding house to […]
My back to school presentation about my Tourette’s Syndrome and OCD
I have made this video to present to my school and year group so that they have a bit more of an understanding of my health conditions; Tourettes and OCD. I have made it as colourful and bright as I can. I hope you will enjoy watching it and that perhaps it might help others […]
Tourette’s and Friends Q & A!
Hello, today I have made a video all about what it is like to be friends with someone who has TS (TS stands for Tourette’s Syndrome). If you know someone who has TS then try and make friends with them because they might be in need of a friend! I have made this video with […]
This is me!!
I have made a video all about sending out a message to people about me and my Tourette’s Syndrome. I want to say to other people to not let their Tourettes, or any other conditions, define them or stop them from doing anything that they want to do. I even went to the beach to […]
A week away with the National Children’s Orchestra
Last week I went on a music summer course with the National Children’s Orchestra (NCO) of Great Britain. The course was up past Blackpool in Fleetwood, which is a very long way from Cornwall, which is where I live. I was on the course because I auditioned last year on my cello and was awarded […]
Reading with Tourettes
I have recently found a website and charity called Listening Books which is for people with a disability that struggle with reading because of it. It could be because you have dyslexia, Parkinson’s, are visually impaired or in my case, if you have Tourettes or any mental illness that stops you from reading. I struggle with reading because of […]
Swimming and Pebble Painting
Hello everybody, today I had a mixture of things on. To start with I started some of my pebble painting which is where I collect some pebbles and paint them with these special paint pens which are made for the pebble painting. I started by doing an owl which turned out really well! I like making colourful pebbles or […]
A review of chew jewellery for anxiety, tics and Tourette’s syndrome
I did a review video of my chew jewellery which helps me with my Tourettes and tics. I use them to bite on and that can really help with my tics and anxiety. I love these products and I find them really really useful. I like having a variety of ones so that I am […]
Doctors and Dentists
Today I had a day filled with lots of medical things. It started with a checkup with my paediatrician. We had a good appointment today and we talked about medicines. Because I have been on two different medicines before, Clonidine and Aripiprazole I have to decide whether to look into a different one for me […]
Tangle toys for Tourettes
I review some fidget toys called tangle toys which I find really useful with my Tourette’s. I use these to help with my tics when I am in certain situations like school, or quiet places. Hope you enjoy the video 🙂 Xx Some online places to look for tangle toys: My metallic blue ones came […]
Quay jumping and the cinema
Today I have quite a busy day because I have just finished doing my cello practice which I did for an hour which went quite well today. I am also meeting some friends after lunch to go quay jumping, which means that when it is high tide you can jump off into the sea, it’s […]
I Rode a Bike!!
Yesterday was the first time that I had ridden a bike in at last 2 years! It has always been something that I have struggled with because of my tics; just one arm tic and I could fall off so easily. But I decided to go for it and actually I loved it and I […]
